||Diagnosed with Polycythemia Vera in 1997, Chicago businessman Robert Rosen was shocked to discover that little research was being conducted on the three classic MPN cancers (Primary Myelofibrosis (MF), Essential Thrombocythemia (ET) and Polycythemia Vera (PV) and that there were no advocacy groups specifically working to assist people with these rare blood cancers. In 1999, Rosen and a small number of other MPN patients established the MPN Research Foundation (at the time known as MPD Foundation) as a way to catalyze research to better understand these related cancers and to advance treatments for MPN patients. To date, the MPN Research Foundation has awarded more than million for MPN research, focusing on projects that accelerate the understanding of MPNs and lead to the development of new treatment options.
The MPN Research Foundationís history as an organization that was founded by patients for patients continues to influence everything the Foundation does. In addition to funding promising MPN research, the organization works to educate and empower patients, family members, doctors, and researchers across the MPN community. Together, the organization is committed to change the prognosis for people living with an MPN.
We seek a dynamic, entrepreneurial, and experienced development professional with demonstrated success in biomedical research fundraising, including experience working with individual donors and foundations and managing major gifts relationships. The ideal candidate will continue to grow and diversify annual revenue from all sources.
This individual will possess the following skills along with the right personality mix:
- A proven track record of working with high net worth individuals and communities and success in securing 6-figure gifts;
- Expertise in new approaches to grassroots individual giving in the medical community including:
- An understanding of digital/analytical approaches (in house or to manage a vendor appropriately);
- A working knowledge of the utility/role of CRMs in managing stakeholders and communications;
- The ability to define appropriate business processes and contribute to design/use of CRM across the organization; and
- The understanding of if, when, and how to segment audiences and implement creative approaches to grassroots/online audience engagement.
Knowledge and understanding of major foundation relationships and partnerships is a plus.
The successful candidate will be innovative, relational, and have a collaborative approach to development, including a balanced commitment to personalized and process-oriented fundraising methods. He/she/they will be a self-motivated, curious, problem solver with demonstrated business process-oriented leadership skills, including the ability to prioritize tasks, achieve goals in a timely manner, and manage up. This individual will leverage best practices in digital message testing and tracking methodologies and be cutting edge in their approach to the utilization of data and its use in making informed decisions.
This person will exhibit a sophisticated personal presence, a high level of emotional intelligence, and superior interpersonal communication and organizational skills with coworkers, Board members, existing and prospective donors, and other stakeholders. A background in medical research fundraising or fundraising from the patient perspective and within the biomedical industry is critical as are empathy for those affected by MPNs and a passion for the mission. He/she/they will have strong writing and listening skills as well as possess an ability to synthesize and clearly communicate complex ideas and theories of change in ways that are compelling to diverse audiences. Being creative, flexible, and adaptable to the demands of an entrepreneurial, fast-paced, and responsive environment will be highly advantageous.
An undergraduate/graduate degree from an accredited college or university and/or a CFRE designation are preferred. Evidence of continuing education through conferences, seminars, and workshops would be a plus.